Monday, April 6, 2009
This weekend I held Justin as he struggled to breathe. He smiled whenever I kissed his amazingly smooth cheeks (he always smiles--he's one of the smiliest little guys I've ever seen). His blood pressure was dropping, and I knew he had to get to the hospital fast. Grace is a neurological mess--I'll post a video later of her tossing her head and slapping her neck. Grace is on a cocktail of epilepsy meds that make Justin's look like cough drops. Annie continues to have difficulty swallowing. Endoscopy showed no abnormalities. She's dropped four kgs in six weeks. Annie is Hep B positive. So is Paula. So is Jasper.
They're all in Hyderabad today, but I'm not. I'm in another state, at my eldest daughter Simona's boarding school, coming from her swim meet. She came in second overall in the junior girls division. She looks wonderful and is very happy. Going to her variety show tonight, and her parent-teacher conference tomorrow. Then taking all of my kids to the amusement park for Shayna's birthday, and then taking Simona home for spring break.
Annie's getting a g-tube placed tomorrow. Thank the Lord. But the doctor called me and said, "Get here tomorrow. I can't have an intelligent conversation with these ladies about what needs to be done." I begged him to accept my authorization over the phone and he finally agreed
(Wanna help? We need $200.) Bless you, Maudie.
The doctors dismissed my suspicion of thalassemia for Justin and want to UP his gardenal.
Grace has an arachnoid cyst on the brain, but "there would be no real improvement with surgery" (contrary to my research).
Jasper's condition was not taken seriously.
Nathan had an EEG ordered, so we'll see there. I've decided to have them all seen at a newer hospital I've used a few times.
My heart's in two places--is that wrong? Does the choice (family over "work" or "ministry") seem clear-cut? It would be if it were a congregation in which no one would die if a special speaker were called for a Sunday. It might be if I were an employee of a children's home.
But it wouldn't be so easy for an adoptive mom to make that decision, would it?
If I didn't feel so much like an adoptive mom, it wouldn't be so hard. At this point at least, I'm the only mother that ANY (Sim, Shayna, & Amira included) of these children have.